Leah Ashley Adams was born April
25th, 2009 in Shawnee, OK and passed from this life
September 21, 2010 in Oklahoma City, OK.
Leah was born two months early and suffered with Down
Syndrome as well as Pulmonary Hypertension, Pulmonary
Vein Stenosis, Chronic Lung Disease & Chronic Kidney
Disease; as a result of complications she spent most of
her life in the Children’s Hospital in Oklahoma City.
The exception to that was the Holiday season of 2009
when Leah was stable enough to come home! She
experienced one very special Thanksgiving and Christmas
at home with her family. She was known as “Princess
Leah” by many of her nurses in the PICU at Children’s
Hospital. She was loved by her family and the medical
staff that gave her such wonderful care.
Though her life was short, Leah made a difference in the
life of so many that had the privilege of spending time
with her. Most of all her mom, dad and big brother, who walked by her
side through every surgery and sat by her bedside during
long days of uncertainty; who made tremendous sacrifices
to make sure that Leah experienced their loving presence
and tender touch. Leah was such a special gift from God
that they were compelled to put their lives on hold and
in just over a year they experienced a lifetime of
emotion and gave to Leah a lifetime of love.
Now, as a mother of two, we had welcomed our daughter into the world eight
weeks before her expected birthday. We built this
website during her extended hospital stays in dedication to our little
angel, Leah as well as to help with financial support
during our many months at the hospital with a job loss
due to the economy at the time! Leah had
many, many medical issues, first and foremost she had
Down Syndrome. Most of our time was spent in and out of
the hospital which totaled all together - 14 months -
Leah passed away at 17 months of age and was and still is a true blessing! She
had a long history and was such a fragile little girl. We
were anticipating to bring her home a few weeks
prior to her death on a home ventilator. Well that was
the plan anyway! Although, she is very much missed here
on Earth - Leah is now in the arms of our Lord, Jesus
Christ and feeling no pain!
A little history on our
little angel ...
We had complications during pregnancy where she was born
8 weeks pre-mature. On top of her pre-maturity and being
in the NICU for 7 weeks, she was diagnosed with Down
Syndrome upon birth. WOW! - what a shock, we had no idea
during pregnancy and had a lot to absorb in the very
beginning! She has been a real trooper in her early
history of life and a total JOY to have. If that was not
enough, she had also been diagnosed with Chronic Kidney
Disease as well as Pulmonary Hypertension along side of
having Down Syndrome. She wass definitely a full time job!
Most Moms and Dads are running here and there with Ball Games,
Girl Scouts/Boy Scouts, other Sporting Events, Band,
Music Lessons, Dance, Karate, the list goes on and on.
But, in our case, it was pretty much all health related,
going from Doctor to Doctor, Developmental Care
Assistance, Home Healthcare, being admitted in the
hospital for weeks, mostly months on end, etc. Our time
was constantly consumed with our daughter and her health
That is why I built this website in dedication to her!
Instead of helping us financially, we have kept this
site going in order to help other parents who have or
end up going through times like we had with their child.
Being at the hospital where you can't sleep in the same
room with your child, being in the ICU for many months straight,
expenses like - just feeding your family as well as yourself,
money to get to and from the hospital can be a
challenging ordeal. - We would welcome any donation of any kind
if you graciously would like to wish to contribute to our
ministry and in turn, allowing us to contribute and help
other parents and them knowing they may have the gas
tomorrow to get to the hospital or a hot meal the next
day, you are such a
blessing to many families tomorrow and today and we Thank You from the bottom
of our heart!
As a Tribute to Our little Angel - It has now become my
mission to try and help through my life experience to be
there for other parents, whether it be emotionally,
financially or physically who end up with a child in the
hospital who ends up with extended hospital stays.
Please, if you will, follow me on my blog or make a
donation to -
Leah's Hope! My HOPE is that I touch the
lives God Leads me & wants me too -
Please visit our
as a tribute to our daughter, Leah.
Providing Hope & Encouragement to Parents of a Critically ill
Child. Leah's Boutique helps to provide the funding needed in order to
financially help these families in need of support during
extended hospital stays. Please take the time to visit My Blog!